Facebook campaign: "Support for Churg-Strauss"
With an average of only two people per million diagnosed a year
Churg-Strauss or “eosinophilic granulomatosis with polyangiitis”, is an extremely
rare, uncomfortable, and potentially life threatening disease... without any known
cure.
Never heard of it?
Neither had I until someone very close to me was diagnosed.
This inspired my Facebook campaign idea. I hope to gain awareness, track the
progress of potential breakthroughs and post advice or resources for anyone also
dealing with the disease.
Mission statement:
Churg-Strauss syndrome is an uncommon disease that deals
with the inflammation within blood vessel walls, and it currently has no cure. “Support
for Churg-Strauss” is an outreach page dedicated to raising awareness to this rare
issue. By providing information, highlighting resources, and tracking updates
on potential breakthroughs we hope to make this issue better known to the
public. Effectively uniting anyone who
is interested in the cause.
Personas
Persona #1) Stephen is a 42 year old man, a little under 6
months ago he began deal with severe issues pertaining to his sinuses and
asthma. Finally after giving in and going to a doctor, he was diagnosed with
Churg-Strauss syndrome. Stephen now is browsing the internet for information
and resources so he can better understand this rare issue.
Persona #2) Lacy and Travis are young parents with a 6 year
old son who was diagnosed with Churg-strauss. They have exhausted all of the
resources they could find, but hope to track any developments pertaining to
finding a cure. Even more so they hope to find someone else impacted by this
syndrome to talk to their son. They feel having someone who is also dealing
with the syndrome would be great for their son to ask questions and see, that
with proper care, it is a manageable disease.
Persona #3) Sarah is a 24 year old who spends a lot of her
time on Internet, especially facebook. Always looking for new stories to read
she always finds her way to interesting articles on the internet. She also
browses the articles her friends posts of Facebook. Through this she has become
aware of several organizations and been a part of several volunteer projects
that have happened throughout her community.
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